The lifestyle app
for adult PKU.
Accurate phe estimates, photo logging, and your daily budget in one place. A free app built by PKU families for PKU families.
PKU management has changed.
Challenge Accepted
For decades, adults with PKU have been told that managing the condition would get easier soon. That time is now.
New methods of clinical research mean an accelerating pipeline of new treatments.
Research shows phe-management apps can help control blood phe levels.
Phebe App's challenge is to bring those innovations to the PKU community in a way that adds value to their lives, instead of handing them another data collection job.
An App for the Whole You
Phebe brings it all together.
Accurate Phe estimates
The phe math, done for you, on the foods PKU adults actually eat.
Photo Estimator
Point your camera at a meal and get a phe estimate. Logging fits real life.
Daily Phe budget and tracker
Set your daily phe budget, log as you go, and see what is left.
Today
Phe budget
640 / 900 mg
260 mg left
Photo Estimator
Snap a meal, get a phe estimate
Tap to adjust and save
Privacy-by-design
Built to put your interests first.
You control your data
Help advance PKU treatments.
By PKU families, for PKU families.
The tools we wished we had.
From our executive director
Dedicated to PKU
What is Phebe
Phebe is a 501(c)(3) nonprofit dedicated to the development and delivery of improved therapies, pharmaceuticals, and products to the PKU community.
We accelerate PKU therapeutics by partnership and community development programs, filling the gaps in traditional advocacy with a hands-on approach.
Phebe App: A free tool to help carry the load.
Our first product, Phebe App, brings dietary management for busy adult lives with the sophistication users expect from other apps. I built it for my adult son with PKU, to take on the recordkeeping, measurements, and daily conversions that usually fall to a PKU parent.
It's Worth Going Back
Clinicians still recommend diet for life, yet 77% of adults with PKU are no longer under care. As AI accelerates therapeutic discovery and new tools arrive, returning to treatment can finally feel worthwhile. Phebe App is here to support you.
Phebe: For the Complete Person
We built Phebe App with compliance, privacy, and safety first, so families like ours could trust it. It is designed as a lifestyle upgrade for PKU adults, not another task on an already heavy treatment plan.
Phebe helps connect phenylalanine levels to diet, lifestyle, and wellbeing, treating phe management as one part of a full life.
Nina Kilbride, Executive Director, Phebe Corporation